Yesterday, our household went on an adventure because, in a rare coincidence, both Nikki and Pam had the day off. We chose to adventure down to Canton, MI and visit the IKEA store there. If you’ve never been, I highly recommend it! It’s huge and it’s fun to wander through the displays and day dream about your future home’s living spaces.
It was a great time and by the time we got home, we were tired, but very happy. We got an unexpected surprise when Pam’s parents came over to give us a new cart to help us organize our kitchen better (the theme of the day was furniture, I guess). We settled in and watched a couple of movies to top of the day and it was pretty great.
Adventures still mean a lot of spoons were used, though. So today, when I woke up, that meant that I was more tired than usual. My joints hurt more than usual, my symptoms were a little harder to settle down so that I could get out of bed, and I slept a little later than I’d intended.
Tonight, my parents are playing in their band and a good friend from my church is playing at a local bar after that, so today can’t necessarily be a “rest day” for me. While I’m excited for the plans laid out for tonight, it’s hard to not feel a little overwhelmed by the process of getting my body into a good place. It takes careful planning of meals, medicating at the right time with the right medication to ensure the best mood and physical state, and figuring out what I will need immediately or to have accessible to me while we’re out later. Should I use my cane or, if not, should I bring it with me just in case I need it? What pain medications should I have accessible to me? Do I have a plan for getting home safely if I need to leave before other people are ready to leave or are unable to get me home? How much do I need to prepare mentally for these events?
I don’t think healthy, able-bodied people realize sometimes how much work goes into living with an illness. So in the near future, I’m going to be posting a series on how best to support your spoonie but for today, I end with a question: what does a day in your life look like? Does it look like mine or is it a little easier? A little harder? Let’s have a conversation, guys!